Hello Deater Family & Friends!
It’s that time of year again for another installment of the Deater Foundation Inc. newsletter! We hope you find this update informative and helpful! This year’s newsletter contains lots of great information on what’s been happening in the world of HSAN1 over the past year, including: the published findings from the 2-year clinical trial involving L-serine therapy in patients with HSAN1, gene silencing and MacTel Project research updates, as well as personal perspectives and testimonies from people currently living with this disease.
Continued advancements in HSAN1 research gives hope to those patients and families affected with this disease, and we can’t thank you enough for your support and contributions that are helping make this invaluable research possible! We hope to help sponsor another International HSAN1 Symposium, hopefully in 2020, so your generosity will have a direct impact in helping to make that important conference possible. Please find attached to this email this year’s newsletter.
Thank you again for your continued support!
Sincerely,
Tami Murphy
Just in case you missed the link in the first paragraph, here it is again! http://www.deaterfoundation.org/wp-content/uploads/2019/05/2019newsletter.pdf