What about Khemissa?

What About Khemissa?
Submitted by: Ellen Burns

khemissaDr. Khemissa Bejaoui will attend the Deater family Reunion this year. Khemissa has worked tirelessly at the Cecil B. Day Laboratory for Neuromuscular Research for 12 years, most of that time seeking the cause and cure of HSN 1. Khemissa will present the results of her recent work and collaboration with scientists in California and Japan. She will talk about future plans for research into the disease.

Most of Khemissa’s relatives live in Tunisia. She has “adopted” the Deater family as her American family. She has taken a personal interest in the research. Larry Deater and Ellen Burns, who have worked closely with the researchers at the Day Lab, are proud to count Khemissa as a friend as well as a colleague.

Khemissa has interested scientists around the world in the importance of research into HSN 1. She and her friend Paul have hosted researchers at their home and gained from them commitments to work on the project. She has selflessly shared with other researchers the results of years of her hard work, so others can use the information to advance knowledge about the disease. She believes deeply and passionately in this calling.

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Hand Controls

Miracle of Hand Controls

Chris Deater Christensen shared with us recently the following account of her miracle. She wrote: “Through a friend of a friend of mine here in Colorado, I am now the proud owner of hand controls on my car. I had been pricing hand controls for about a year and was having trouble deciding if I could justify the cost. Amazingly, out of the blue my friend calls and says this friend of hers, Janet Desgalier, no longer drives and wonders if she knows anyone that can use the hand controls on her car. This was like a miracle to me. Then came the question of who could take them out of one car and install them into my car without great cost or the inconvenience of leaving my car for more than a day somewhere. Here comes my second miracle, Dave Bartholomew. He and Joan were living about two hours south of Longmont at that time. They drove up to Longmont, and in a few hours on a cold Saturday before Christmas, he had the transformation completed. The kindness of all of the people involved in this adventure has made life so much easier for me.

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