Personal Perspectives

Louise Adams Hess

It’s hard to believe more than two years have come and gone and our L-serine drug testing is coming to a close. We are anxiously awaiting the outcomes from our efforts. My effort seems trivial… taking the serine 3 times a day was not a problem (even though I don’t like the after taste and would prefer to take it in capsule form instead of the current powder that must be mixed with warm liquid to dissolve…hence the after taste!)

The 7 hour trips to Boston twice a year were sometimes hectic with traffic and storms but when we arrived we had a comfy hotel to rest ourselves prior to testing. The hotel is situated between the neurology offices and Massachusetts General Hospital (walking distance for those that could) where we had appointments for bloodwork and neurological workups. Once each year we had to stay a second day for more testing there and additional testing at the University of Massachusetts Hospital (UMASS) in Dr. Browns arena. These tests were rather unusual …sweat testing, tilt table testing and skin biopsies (that left its little pencil point size scar each time).

The best part of each visit was the

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Larry Deater’s Legacy

Larry Deater’s Legacy

When Larry Deater died of esophageal cancer on February 19, 2015 at the age of 59, he left instructions that his body be used to further the research on HSAN1, the disease he had lived with for most of his life.

On March 11, 2016 at the Neurological imaging/ Department of Radiology’s weekly “Neuropathology/ Brain cutting conference”, Larry’s case was presented. The target audience for this activity was “trainees (medical students and residents) and faculty in clinical and experimental neurosciences (neurology, neurosurgery, neuro-radiology, neuropathology, neuro-oncology, psychiatry) and pathology.”

Larry participated in neurology seminars at MGH several times during his lifetime. He would be happy to know that he was still teaching medical students a year after his death.

 

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