Submitted by: Ellen Burns–Vice President
Research costs a lot of money. The Deater Foundation was established to help pay for research into the cause and cure of the Deater disease, HSN 1. Muscular Dystrophy Association has generously supported research for neuromuscular diseases including HSN 1. Dr. Khemissa Bejaoui, the primary researcher at the Day Lab for HSN 1, has spent many long hours researching for and writing for grants of money to support her work. Recently, she has submitted a grant request for a substantial amount to the National Institutes of Health. Please keep these efforts in your prayers.
Research costs include not just the salary of the researcher, statisticians, and secretarial support, but also the lights, heat, and upkeep of the building; the purchase, updates and maintenance of the huge and costly computer run machinery; the phone bills, paper, and paper clips. Since 1992, the Deater Foundation has provided anywhere from $8000 to $24,000 in a year to the Day Lab. Although the Deater Foundation, by itself, does not come close to providing enough funds to research HSN 1, it serves as an example to other potential donors and “primes the pump” into the well of research dollars.